I was diagnosed with P.O.T.S. October of 2014. It was my senior year and I had been fighting my body since the beginning of freshman year. After years of doctor visits and many ER sleepovers, Mayo Clinic had taken on the challenge of figuring out what was really going on.
There are many conditions that I have: EDS, Chronic Fatigue, Chronic Migraines, Polycystic ovarian syndrome, Angioedema, Convergence disorder, Tietze syndrome, and Postural orthostatic tachycardia syndrome. Some explain themselves and some are very complicated. What I want you to know is that these cause me to be in pain every day. They also have taken away and put obstacles in my future path. For example, having children my not be possible for me or one day I could lose the ability to use my legs properly. However, I also have to say that they have brought many blessings into my life as well.
I enjoy all the little things that nobody seems to notice. I have more compassion and love for others but that doesn’t mean it hasn’t been hard.
I graduated high school and was able to walk across the stage to get my diploma. Since I was always so sick, I was physically in classes for maybe 2 years out of the 4. The other 2, I was teaching myself the homework, dealing with doctors, and sleeping in bed.
I didn’t want to miss out anymore. So I went off to college with new skills to manage my pain. Sad to say that a semester and a half in I had to drop out due to how much pain I was in. Physically and emotionally. I took the semester and the summer off to fully focus on treatment.
I am fully dependent on my mom, my best friend, and my service dog Romeo (pictured above!). Step by step we are trying to get me more independence and be able to rely only on my service dog for help. I struggle everyday, trying to keep progressing. One day I will be where I need to be and I am going to enjoy the journey. I hope you do too.